Patient organizations dedicated to homocystinurias
Other patient organizations
Many other national patient associations offer support to patients with homocystinurias, methylation and remethylation disorders, and to their families. National contact points may be found on the website of umbrella organizations:
This is E-HOD
European network and registry for homocystinurias and methylation defects. Its aim is to improve the health of children, adolescents and adults affected with these rare disorders.